We finally made it home on Monday and had our appointment with our pediatrician on Tuesday. Her routine newborn check up was great, but he did tell us that there was definitely something wrong with her eye and he wanted us to be seen by an ophthalmologist.
We were able to get an appointment as a work-in today with a pediatric ocular plastic surgeon in Birmingham. We knew we needed to be seen by an actual pediatric ophthalmologist, but he had a two month waiting list! We wanted to be seen sooner than that, so we took the appointment with the plastic surgeon, hoping to at least get an answer or a referral to someone else.
We headed to Birmingham today and made it to our 2:00 appointment at about 1:30, expecting to be there for several hours since we were being worked in . Thankfully, we were only in the waiting room about 10 minutes before we were called back to see they doctor. He was wonderful! He looked at her eye and told us she had what is called microphthalmia, which is a developmental eye disorder that basically means a "small eye". For some reason her left eye did not develop properly. There is no known cause, it is not necessarily genetic and is not linked to anything that might have happened during pregnancy. He told us that her eye would never grow normally and that she would never be able to see from that eye. He then told us he would really like for us to see a pediatric ophthalmologist, Fred. (the same doctor that had a two month waiting period) and sent us over to his office. We were put in a room to be seen--all before our scheduled 2:00 appointment! The Lord totally went before us and opened the doors for us to be seen by exactly who we needed to see. In less than an hour we were seen by two specialists! The pediatric ophthalmologist did a more thorough exam using a tool to open her eyes and confirmed what Dr. Long had told us about the microphthalmia. We were concerned about her vision in her right eye, but he said she has a completely healthy right eye--Praise the Lord!
Where we go from here: in 3 months we will go to the Alabama Eye Foundation to be educated on and hopefully fitted for what is known as conformers that we will put in her left eye. The goal with these will be to help her eye socket and lid grow as her face grows so she doesn't have any asymmetry in her features. Eventually she will be given a prosthetic eye that she will use. Both doctors said that the prosthetics are great and you often may not even notice when people have them.
It's never easy when your child is "sick" in any way, but as Dr. Long told us today, this is a bump in the road, not a catastrophe. We went expecting similar news to what we received and we were glad to get clear answers and know that we are on the best path for Isla. Even when we were suspect of there being a problem, Brittany and I reminded ourselves (Zack writing now) that the masterful Creator formed Isla in the womb and knew exactly what He was doing. As far as we know, Isla will live a healthy, happy life, just like our other children. She is beautiful, and we can't wait to watch her grow with her brother and sister. The Psalmist says,
Behold, children are a heritage from the LORD,
the fruit of the womb a reward.
Like arrows in the hand of a warrior
are the children of one's youth.
Blessed is the man
who fills his quiver with them!
He shall not be put to shame
when he speaks with his enemies in the gate.
(Psalm 127:3-5 ESV)
Our quiver is filling up! We will covet your prayers as we continue this journey with Isla. There are obvious challenges that will come along the way, but as we've already seen today, the Lord is faithful and is going before us preparing the way.....not surprising though is it!?




5 comments:
God couldn't have given Isla to a more perfect family! Yes he knew exactly from the day she was created the challenges that she would face, but God chose you as her parents and trusted in y'all that you would provide for her and care far her the best way y'all know how. Each step of the way he is with you just like today. It might not be an easy road but with God on your side there are so many possibilities for Isla's future! She is beautiful and perfect and surrounded by family love and most of all the love of God! You all will overcome for He overcome the world! Love you all and will pray for you all daily!!!
The Rays
I know that God has placed sweet Isla here for a special reason. I can't imagine what you all are going through but I do know that God has a big picture that we can't see. Only time will tell the wonderful things that He has planned for her life. She is beautiful and she has family that loves her so much. I will keep you all in my prayers!
I know first hand how hard it is for your child to have something wrong that you can not fix or make better. I honestly thought the day we put hearing aids on Amanda that she would hear normally again like everyone else. It has been a hard road for her and for Ralph and I at times but God knew exactly what he was doing and even though I would give anything for she and Greer to be able to hear I know that they are perfect in his eyes (and ours). You will go thru many emotional ups and downs but as you know God will see you through them. Amanda will graduate vet school next May and Greer left in January to go to Australia for 2 years to study at Hillsong College. I know that the struggles they have over having a profound hearing loss has made them stronger and also realize that they need to depend on God to help them reach their goals and ask for his help daily. Greer told me before she left that people are always telling her that she should pray for God to heal her. She said that she doesn't feel like she needs healing. She said God made her this way for a reason and she wants to use it as a witnessing tool. God has blessed us so in all that they have been able to do and accomplish even though it is a little bit harder for them If you ever need to talk to someone who has been where you are please know that I am hear.
Penny Ferguson
We have prayed for Isla Rose and her sweet family before she ever came into the world. She is a precious gift and God has great plans for her life! So thankful you found the best doctors and that you can anticipate the future with confidence in a perfect creator. We love you all and pray for God's perfect will in the days ahead.
Hello, my name is Alicia Davis and I live in Jacksonville. I heard about Isla Rose from Courtney Bonones. I attend Grace Fellowship with her. I wanted to let you know that I have a son, Judson Owen , who just turned 4 with the exact same thing. He has had his prosthetic for little over three years now and he is doing great. Actually, he learned to put the prosthetic in himself just this week. We were so proud of him..lol. If you would like to talk or need help or encouragement please get in touch with me. You can find me on fb or just give me a call...2564855364.
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